Thank you shoppergal, this is why I'm thinking DCA may not be for us. Our son won't need additional care on an everyday basis. So maybe a different form of assistance, just something to help us absorb the costs of travelling to the hospital, medical equipment, that kind of thing. There might not be anything but if there is our son definitely deserves a chance of getting it.
We're going to make an appointment with the social worker. We already know her (unless there's more than one social worker) because when our son was born he was extremely ill -unrelated to his current problem- and she was absolutely lovely, helped us to arrange an emergency passport for him and arranged financial assistance with our medical bills. So we'll be in contact with someone whos worked with us before.
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